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Lewis Hine, a 14 year old who was diagnosed with a brain tumour didn’t want his disease take the best of him and created A World with Friends (formerly known as Friend finder), a network/charity meant to help all children and young adults suffering from long-term illnesses or disabilities connect among themselves.
We arrange a variety of events for children and young people between the ages of 5 and 25.
Lewis started A World With Friends to help children who miss a lot of time at school due to chronic illness and disability come together to make friends.
Read his story below
In November 2017, Lewis talks to Holly and Philip about how the school prom has become a rite of passage for teenagers, but every year there are hundreds of children around the country who can't attend theirs because of serious illness. He talks how he is on a mission to change that. He discusses his inspiration him to help other sick children who miss out on school, find friends, and even throw them their very own prom. He is joined alongside mum Emma and his new friend Izzy, who attended the prom after also feeling isolated as she battled a brain tumour.
In July 2018, with the help of O2 and Go Think Big, AWWF held a prom in Birmingham to give young people who have missed their own prom due to illness or disability the best night of their lives. Go Think Big supported the charity.
Lewis talks about overcoming his condition and the success of the charity.
After Lewis leaves Wembley arena, he is created by crowds of fans wanting a photo!
I was only 17 months old when I was first diagnosed with a brain tumour and I have been battling illness ever since.
I have had over 14 brain surgeries among other surgeries and treatments. I suffer with hydrocephalus (water on the brain) which is treated with a mechanical pump in my brain called a 'shunt' and I also have drug resistant epilepsy. I was diagnosed with end-stage renal failure and although I am currently in ‘recovery’, I now, undergo regular testing to monitor this. This now affects and limits what medical treatment I can receive for my other conditions and as you can imagine, this has made life even more challenging than it already was!
My most recent surgery was to implant a VNS device. A Vagual Nerve Stimulator sends an electric current to my brain for 30seconds every minute. The idea is that the new electric current from the VNS disrupts the electric signals in my brain causing my seizures. I currently have 5-6 seizures a day so I am hoping this will improve my quality of life.
Like most teenagers I am interested in football, NFL, UFC, music, video games, but unlike most I need 24-hour support. Due to my long-term illnesses I spend a great deal of time in hospital which isn't just tough because of the medical treatment but it also meant that I missed a lot of school. A lot of young people quite naturally complain about having to go to school, but they don’t realise that school is not just about education it is also about learning how to interact with other children and how to make and keep friendships.
Over the years every time I started to make friends at school or college I would end up back in hospital. By the time I returned to school the friendship group had naturally moved on and I found myself having to start all over again. Things were tough, and I never got invited to birthday parties or to anyone’s house after school for dinner or to just hang out and socialise!
Chronic illness and disability affects an entire family; siblings are affected because there are so many things that they cannot do together as a family and usually one parent has to become their child’s carer which means they are unable to work, so money is often scarce too! Most of us are all too aware the huge impact our conditions already have on our families and we really don’t want to cause them any more distress, so we don’t tell them what is going on. This means we feel even more lonely and isolated - I felt I couldn't tell anyone about my experiences, good or bad as I just didn't have any friends to talk to.
However, I discovered that I was far from alone and that there are over 1 million children in the UK that miss school due to a long-term illness and that is when the idea of Friend Finder began.
A World With Friends has grown rapidly and in our very first year we welcomed over 200 children into our A World With Friends community and helped them make friends. We have now helped thousands of children and we are inundated with requests globally from children and their parents who want to know when we will be coming to their part of the world.
In 2017 we held our first ever A World With Friends Prom for 150 chronically ill and disabled teens and their carers at The Guildhall in Portsmouth. It was amazing over £15,000 was raised, dresses, suits and shoes were all donated, we even had people doing the children’s hair, and makeup was done by students from a local college! These teens who would not have been able to attend their own schools’ proms were able to come to The Guildhall for the night of their lives! We are now on our 6th year of putting on Proms for chronically sick or disabled young people to give them the prom night they have always dreamed of. Since the start we are have held proms across the UK in Portsmouth, London and Birmingham!
A World With Friends success has exceeded my wildest expectations; my 16th birthday video went viral on Facebook and received over 30 million views, I have been interviewed by the national press, appeared on national television, filmed a CBBC documentary about my life, written a book and received many prestigious awards for my work – I even travelled to Hawaii in 2019 to receive a Bakken Invitation Award part of which was a $20,000 prize, which I am hoping will help A World With Friends go global.
I want to prevent any child from feeling that awful loneliness and isolation that I felt and if A World With Friends can help just 1% of those one million children (10,000) to find a friend then that would make an amazing difference!
Like many children affected by chronic illness and disability, I know my condition cannot be cured and it is life limiting, but I am not going to let anything stop me from helping other children that are experiencing the same things that I did!
I truly believe that having a friend is one of the most important things in life and is key to our mental and physical wellbeing. Everyone needs someone to talk to, to smile, to laugh and sometimes cry with!
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A World with Friends Registered Charity 1175539
Guildhall Square Portsmouth Hampshire PO1 2AB
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